Tuesday, August 25, 2009

I apologize for my absence.

Seems like life is running away with me. I have been busy with court stuff. And of course with Lillian who is getting so big! And Alexander starts school next week. But it all caught up with me and I am stuck in bad sipping on some mint tea with a nasty sore throat. Giving me the perfect time to update my blog!

First and foremost I want to thank everyone for their help with the headstone. We were unable to raise the amount we wanted, but have enough to get a less expensive stone. I worked for hours photoshopping a picture to go on it. Here is the preview from the monument company we think we will go with, it still isn't ordered, we haven't signed a contract, we are just in planning stages. I am dragging my feet because I really wanted a better stone.

And here is the image I made for my Genevive.


I would also like to take a moment to remember all the new Angels I have heard about this week. It breaks my heart, I wish there were more I could do. Lets hope after this week we won't hear about any new angels for a very long time.

Ethan Skidmore passed away on August 21 after a long battle with HLHS. I have been following his carepage for some time, and am so sad he didn't make it. He was 6 months old.

Laurie from a stillbirth forum I frequent has just found out her baby Declan passed in utero. She was headed to be induced on Aug 23. This is not her first stillbirth, It really is not very fair. My heart goes out to her.

Also Mia a facebook friend is having a C-section today to deliver her daughter Nevaeh. Nevaeh has Anencephaly and is expected to live only a short time. As we speak I hope she is getting a long bonding time with her sweet Angel.

Monday, July 20, 2009

6 months...

Apologies I didn't post sooner. Genevive's 6 month anniversary hit us hard. I didn't sleep for a week before, and then could do nothing but sleep for a few days after. For her 6 months we made a temporary headstone, since we didn't make enough for a real one yet, but didn't want her grave empty. We weeded and evened out the dirt. Put down chipped marble. Decorated the marble with the gemstones we had on the grave before. And added a special butterfly and frog we bought for her. I hope to have a real headstone for her one year anniversary. I know of other Angel parents who made temporary ones like this and they crack during the winter. They just aren't made to handle the elements. But it looks pretty for now.

I don't know how I would have gotten by without Eddy. he is so supportive of my grief. We were having a really rocky period in our marriage for a while. I believe the twins and Genevive's death has brought us closer together.
Happy 6 months Genevive. We miss you and think of you always.

Saturday, July 4, 2009

Grieving is so hard!

http://brycemoline.blogspot.com/

I follow this blog. This little guy has stolen my heart. He is not doing so well now though. And I feel myself panicking. I feel myself doing what ifs. I want to tell his parents all the important things not to miss just in case. Of course if I sent any message to them suggesting he could die that would be horrific. Why can't we save them all. I wish every pregnant woman was told about NILMDTS and to take a billion photos and stuff, just in case. Then there would be no woman who has lost her baby and said, I wish I had spent more time with them, I wish I had better photos. I wish I had more memories.

I wish I could help people more. I know how these parents feel, I watched Genevive struggle to oxygenate herself. It ultimately led to brain death and organ failure. I understand that terrible feeling in your gut. I wish I could take it away for them. I don't know why I follow these things, I think I am just to sensitive. Please pray for Bryce, the world doesn't need another angel.

EDIT: Bryce did pull through and is still fighting! I have a good feeling, I hope he goes home with his mommy and daddy soon, the NICU is such a tough ride.

Sunday, June 28, 2009

6 months approaching

Yup, 6 months is approaching, and it is hitting me hard. I haven't been sleeping, and I don't really know what to do with myself. I have put a lot of energy into the headstone fundraiser. But at this point I am discouraged. it has petered out, I don't know any other places to post about it, and asking others to repost it hasn't gone well. I just don't have a big enough presence on the net I guess. I have done about as much in her baby book as I can. I am just running out of things to do for her. So what do you do when there is nothing left?

I guess I will find a new video for the front page.


Here is Genevive the morning that she got sick. I have watched this a lot to see if there were any signs that I missed. I had her out for a couple hours.